© Copyright 2025 HRB TMRN. All Rights Reserved. Website design by: Rob&Paul.
Rare Disease Research Conference 2025
Event Details
Registration is now open – CLICK HERE
This one day in-person conference will bring together world leading researchers, patient advocates, industry representatives and other stakeholders to share knowledge and lived experience across topics such as rare disease research methodology, translation, European Reference Network Patient Registries and rare disease clinical trial partner perspectives.
Rare disease researchers and clinical trialists will be able to showcase their work through poster presentations. Submission of abstracts of rare disease case studies and research are now invited and the deadline is Friday 7th February 2025. Please click here to view the abstract call.
The O’Reilly Hall, UCD is a wheelchair accessible venue. If you wish to discuss any accessibility requirements, please email RDCTN@ucd.ie.
Further information on the conference is available at: https://rarediseaseresearch.ie/conferences/
more
Organizer
Rare Disease Clinical Trial Network Ireland
We are a Health Research Board (HRB) – funded network aiming to increase activity in rare disease clinical trials in Ireland. Through collaboration with patients, researchers and industry, we support development of rare disease clinical trials, trial methodology and researcher training, while keeping the patient voice at the centre of everything we do.